Use a slip-on typing aid to touch the keys if you lack the finger muscles to pick out keys
If you have problems using the keyboard, try different positions such as higher, lower, on a sliding tray to bring it closer to your body, or on an overbed table
Use a child’s keyboard to make it easier to reach the keys without reaching as far to type
Check your computer’s adaptive settings for typing and mouse use and adjust as needed, talk to an assistive technology specialist for help
Talk to an assistive technologist to see if a voice input system would be helpful
Go to your state’s DMV website or call to find out how to apply for a disabled parking placard for your car or request a form from your physician
Things to consider when deciding on a van to transport your wheelchair
Consider if you have an existing van that can be converted or if you will need to purchase a new vehicle
A full-size van uses a lift, can hold more than one wheelchair user at a time, offers more storage space, and more maneuverability. However, you usually need to lower the floor or raise the roof and doors
A minivan typically uses a ramp, you usually lower the floor and choose a rear or side conversion. They are often cheaper than a full-size van but have less space
Difficulty using the gas and brake pedals?
If your arms are stronger, consider using installing hand controls instead
Difficulty getting in and out of the car?
Use a Handy Bar for additional leverage when getting in and out of the car
Use a swivel seat to make turning to get in and out of the car easier
Difficulty transferring from your wheelchair to your car seat?
Use a transfer board to help you transfer from your wheelchair to the car more easily
Purchase an accessible van so you can drive your wheelchair into the van instead (using a ramp or lift)
When booking a hotel, ask…
Ask if they have a handicap accessible room. Be sure to ask specifics including:
Is there a roll-in shower and does it have a hand-held shower head?
Is the room on the first floor?
Is there an elevator?
Does the room have wide enough doorways and turning radius for my specific wheelchair?
Is the toilet seat elevated?
Are there grab bars?
What is the height of the bed?
Is there space under the sink so my wheelchair can roll close enough?
When flying on an airplane…
Make a reservation for a seat at the front of the plane on the aisle and tell the ticket agent you will check your wheelchair at the gate and require an aisle wheelchair
Remember to pack your charger and check voltage requirements if travelling to another country
Be sure you know how to disconnect your wheelchair’s battery, fold it down, and put in in manual mode so it can be moved to cargo mode
Consider the length of your flight and whether there is a wheelchair accessible toilet, an on-board aisle wheelchair to use, or if using adult diapers is a better solution for you
Manual wheelchairs are an excellent choice if you have the arm strength to propel yourself, they are easy to fold up and put in the car when traveling, shopping, or heading to doctor appointments
Why should I use a power wheelchair?
Power wheelchairs allow you to keep your mobility, even if you have weakened arm strength, they can meet your needs now and as your disease progresses, but are not as easy to take in the car
Should I use a manual or power wheelchair?
Many people with ALS have both, a manual wheelchair for transportation when going out and a power wheelchair for use at home
Talk to your therapist or a Seating and Wheeled Mobility Team to help determine the best chair for you
Do I need a seating or positioning cushion for my wheelchair?
Wheelchair cushions can help keep you comfortable when sitting in your chair
Positioning cushions can help keep you properly positioned and offer support if you have weak trunk muscles
Hopefully, this guide has helped you learn more about some of the aids available for people with ALS. If you still have questions contact your physician, occupational therapist, physical therapist, or medical professional.
John Hopkins Medicine. (n.d.). ALS - Amyotrophic Lateral Sclerosis. John Hopkins. Retrieved from https://bit.ly/3kAQKjU
ALS Association. (n.d.). Understanding ALS. ALS Association. Retrieved from https://bit.ly/3jvWiLf
ALS Association. (n.d.). Symptoms and Diagnosis. ALS Association. Retrieved from https://bit.ly/35DdyJM
ALS Association. (n.d.). Military Veterans. ALS Association. Retrieved from https://bit.ly/34ybcfT
Olney, A. (2005). Daily Activities Made Easier for People with Amyotrophic Lateral Sclerosis (ALS). ALS Association. Retrieved from https://bit.ly/31PitWJ
Medical Disclaimer: The information provided on this site, including text, graphics, images and other material, are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other healthcare professional with any questions or concerns you may have regarding your condition.
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